Thank you for your suggestion. Foods like apple cider vinegar, milk thistle and apple tree bark were some of the recommendations. In addition, inducing a chronic state of iron-deficiency can help people with polycythemia by decreasing blood production. When I was first diagnosed my platelets were very high so I Googled “foods to lower your platelets.” Pomegranate was top on the list. Polycythemia Vera Fact Sheet it is important for patients to maintain a hematocrit level below 45%, which is a common treatment target for individuals with the disease1,6. High-sodium foods can reason your body to shift water into your body’s tissues. Use of the site is conditional upon your acceptance of our terms of use. I read that pomegranate and beets are good for me to raise my platelets. doping. Case Presentation: A 67‐year‐old man with polycythemia vera was admitted for management of elevated hematocrit (Hct). 2019 Jan;184(2):161-75. doi:10.1111/bjh.15647, Assi TB, Baz E. Current applications of therapeutic phlebotomy. Here are some suggestions of foods you should eat with polycythemia vera: Protein. Mine, upon diagnosis, was large enough that it caused discomfort and early satiety (meaning I always felt full). For example, the olive oil or vegetable oil. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks of a procedure for a given patient. I did try a few gluten-free breads… nope… nope… not for me. Most literature and information that I gained from attending PV conferences and webinars recommended following a balanced Mediterranean diet. In general, a balanced diet includes a variety of nutrient-rich foods from each of the food groups, including fruits, vegetables, whole grains, lean proteins and low-fat dairy foods. I was diagnosed with Polycythemia Vera several years ago and my treatment regiment has been regular phlebotomies (generally about every four weeks.) Nursing Care in Polycythemia Vera: A Review Article Ayse Ozkaraman Eskişehir Osmangazi University, Faculty of Health Sciences, Department of Nursing, Eskişehir, Turkey, E … All rights reserved. This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply. I have the opposite problem in that I have a blood cancer and I struggle with low platelets. Hope you are doing well (Deb Wesloh, Blood-Cancer.com team member), We are glad that you found the article helpful, @bkoenig2. I have maintained a healthy weight. In addition to eating a balanced diet, you also need to watch your intake of sodium. Patients with polycythemia vera have the potential to develop more advanced chronic blood diseases, such as myelofibrosis or even acute leukemia. Outlook for polycythaemia. By providing your email address, you are agreeing to our privacy policy. Apart from the above valuable info, you can add grapefruit, barley grass powder and essiac tea to your regimen. While some may not experience any symptoms, others may bruise or bleed easily with little or no injury. Need help? Patients with the rare form of blood cancer polycythemia vera whose hematocrit levels hover between 45% and 50% have a four-fold higher incidence of thrombotic complications. I try to eat whole vegies and lots of fruits. Enjoying your winter up in the frigid north? So far my diet has worked well for me but I know my health could change at any time so I try to be flexible. This situation is life-threatening if not diagnosed timely. Polycythemia Vera Treatment Diet Patients with PV should modify their dieting or nutrition behavior. This mutated gene likely plays a role in the onset of PV. Moreover, watch how much salt you eat. Since the day I was diagnosed with multiple myeloma, I have wondered what to eat. Alzheimers Awareness Ovarian Cancer Awareness Colon Cancer It's usually caused by a change in the JAK2 gene, which causes the bone marrow cells to produce too many red blood cells. The article also states that just the blood colors of both foods signal the benefit of blood composition. I knew red meat had a lot of iron. He reported red eyes and generalized pruritis. Ayurvedic diet polycythemia vera Download Here Free HealthCareMagic App to Ask a Doctor All the information, content and live chat provided on the site is intended to be for informational purposes only, and not a substitute for professional or medical advice. Over time, this will help your health care team know how to best manage this long-term diagnosis It was actually more of a challenge than one would think. Thank you. Polycythemia vera diet In general, the diet recommended for people with PV is the same as it is for anyone. Treatment depends on your age and medical condition, and includes phlebotomy, or regular blood draws; chemotherapy or medication. But there are also lots of quackery in Dr. Google. They’d have to pull me away from the ribs like I was Fred Flintstone with the huge rack attached to my car. Without treatment, 50% of people die within 18 Chronic inflammation may be an important driving force for clonal evolution and disease progression in myeloproliferative neoplasms (MPNs), essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF). He had a history of coronary artery disease status post coronary artery bypass graft and peptic ulcer disease status post upper Maintaining a balanced diet is important for weight maintenance for people with polycythemia. I researched what other foods were high in iron, spending hours at the grocery store looking at the nutrition labels (and likely annoying my fellow shoppers) trying to find foods that weren’t iron-enriched or iron-fortified. "Exercise and eat a healthy diet to maintain your weight. What is inadequately controlled PV? I tried taking it, but no matter how I disguised it, it was horrible. I have seen my platelets decrease, but as I pointed out in my story, there’s really no if my diet is doing anything for my blood levels. Promising News for Patients with Polycythemia Vera This is "Promising News for Patients with Polycythemia Vera" by Patient Power on Vimeo, the home for … In this disease… A balanced diet aims to provide you with the right amount of calories, protein, vitamins and minerals your body needs to function properly while maintaining a healthy weight. Good evening! I have lived with polycythemia vera with Jake 2 mutation. : Most patients with polycythemia vera develop the condition in adulthood, most commonly from an acquired mutation in the jak2 gene, and are not born wi ... Read More 0 Skip to content Customer Care: WhatsApp Nos. So I googled it again and it most definitely states that pomegranates are good to increase platelets. Plant iron, she explained, is not as easily absorbed into the system. Thus, there is a paucity of research on exercise responses in patients with Polycythemia Vera. Polycythemia is a rare blood disorder that causes your body to over produce red blood cells, white blood cells and platelets. Patients with the rare form of blood cancer polycythemia vera whose hematocrit levels hover between 45% and 50% have a four-fold higher incidence of thrombotic complications. Each year, only about five new cases of polycythemia in 1 million are diagnosed, according to the University of Iowa. Polycythemia Vera is another medical condition that happens due to imbalance in the rate of production of a certain type of blood cells. Primary Polycythemia Vera is a disorder of the bone marrow. Polycythemia Vera is another medical condition that happens due to imbalance in the rate of production of a certain type of blood cells. Drink 6-8 … Vitamin K is found in green leafy vegetables and certain other foods. Try again or reach out to contact@Blood-Cancer.com. Diet for Polycythemia Vera Eat well-balanced meals complete with fresh fruits and vegetables, lean protein, whole grains, and low-fat dairy. In general, the guidelines for people with PV are the same as for everyone else: eat a lower fat diet in sensible portions and plenty of fruits, vegetables, grains and legumes. Berries, salmon, nuts, avocados, olive oil, oatmeal and vegetables were all high on the list. Thanks for your response. I’m happy these foods have worked well for you. Many cases are mild and may not lead to any further complications. I absolutely love carbs: pasta, bread, pizza, rice, you name it. Each year, only about five new cases of polycythemia in 1 million are diagnosed, according to the University of Iowa. However, what it did provide was an overall improvement in my health. When I was first diagnosed with polycythemia vera (PV) three years ago, one of my first questions was what should I be eating. I feel this has helped. In general, a balanced diet includes a variety of nutrient-rich foods from each of the food groups, including fruits, vegetables, whole grains, lean proteins and low-fat dairy foods. It’s hard to know for certain if this high-speed diet helps because I also take medication that lowers my blood counts. A guideline for the management of specific situations in polycythaemia vera and secondary erythrocytosis: a British Society for Haematology guideline. Without treatment, the symptoms will become much worse and the risk of death from stroke or heart attack will increase. I also avoid sugar! The most dangerous complication of PV is a blood clot. Let us know at contact@Blood-Cancer.com. I checked again, and the one I read says pomegranates contain polyphenols that have an anti-platelet effect. Especially nuts because I now eat a mixed nut concoction I created like a squirrel storing up food for the winter. Since excess red blood cells was what I was trying to avoid, my logic was I should avoid all foods that were high in iron. Almost all patients with PV have a mutation of the JAK2 (Janus kinase 2) gene. Since my heart-healthy diet was similar, I felt like I was on the right path, so I continued. Who knows why some foods trigger good or bad results in our make-u? With some medications eating grapefruit can impact the effectiveness it and is not advised. Br J Haematol. For this reason, our cancer care team , which includes support professionals, strives to develop close medical relationships with you to ensure you get personalized, expert care. I also heard that Vitamin C increases the absorption of iron. As I tell many people with blood cancer, and that is we’re all so very different- what works for one may or may not work for another. First I ate red meat, then I didn’t. Good news - you're already subscribed! Discover (and save!) While no special diet exists to aid in treatment of polycythemia, it is recommended that you eat a well-balanced diet and limit your intake of sodium. However, an off-label use for the interferon has been used to treat patients with PV. Warfarin works best when you eat about the same amount of vitamin K every day. About a year after diagnosis, I met with a nutritionist who explained the difference between animal (heme) and plant iron (non-heme). …Ugh…I admittedly did have a slight candy habit…okay maybe more than slight. Shayla (Blood-Cancer.com, Team Member). In addition, the overproduction of red blood cells causes an increase in blood volume, which can lead to an enlarged spleen or liver. The efficacy and safety of continued hydroxyurea therapy versus switching to ruxolitinib in patients with polycythemia vera: a randomized, double … The capsaicin in cayenne stimulates blood flow. Instead, I started eating smaller healthy food portions more frequently. Your doctor or dietitian can help you determine your individual needs. If you undergo phlebotomy as your form of treatment for polycythemia, you may worry about iron deficiency. (Deb Wesloh, Blood-Cancer.com team member). I was diagnosed with Polycythemia Vera several years ago and my treatment regiment has been regular phlebotomies (generally about every four weeks.) Case Presentation: A 67‐year‐old man with polycythemia vera was admitted for management of elevated hematocrit (Hct). This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The first step in reducing your sodium intake is to stop adding salt to your food during cooking and at the table. I’m not sure if that will work but at least I will be doing the most I could. Taking blood out of your veins. In addition to eating a balanced diet, you also need to watch your intake of sodium. She’s here to talk about her 20-year journey with this condition and also tells why she works with Director Cynthia Anyone who has polycythemia vera must receive treatment. The outlook for polycythaemia largely depends on the underlying cause. Your increased blood volume also increases your risk of high blood pressure. Clearly, I was overthinking this. Cut – sugar, processed “white’ flour, junk food. Way to go!! Maintaining a balanced diet is important for weight maintenance for people with polycythemia. Mar 15, 2016 - This Pin was discovered by Elizabeth Mariano. Knowing that PV can cause cardiac events like stroke and heart attacks, I scrolled the Internet looking for foods that were heart-healthy. Corleone holds a Bachelor of Science in nutrition. It’s tough sometimes, but I plan to keep at it too – 3yrs and counting! Would get everything stabilized before any elective surgery. Polycythemia vera is a chronic condition that can't be cured. I think most of it goes back to what makes you feel the best. I didn’t eat oatmeal, now I do. FS13 Polycythemia Vera Facts I page 1 Revised April 2015 Causes The cause of PV is not fully understood. Complications. Hi, @hawkfan01 welcome to the network. The patient denied chest pain, headache, paresthesias, easy bruisability, epistaxis, or melena. Diet for Polycythemia Vera Editor’s note: It is best to check with a healthcare professional before starting any new diets. I needed to drop some weight so I started a diet plan that would put me in nutritional ketosis. The aim of treatment for polycythemia is to decrease blood volume. Recent scans show that my spleen and liver are normal size and my heart and cardiovascular system have no issues. Following a special diet can aid in the treatment of a number of chronic diseases, such as diabetes and heart disease. This situation is life-threatening if not diagnosed timely. There are people who overcame lymphoma with diet. Limit sugar? After reading some books and hundreds of papers, I reached a simple list: Below are some of the suggestions for a Polycythemia Vera Treatment Diet. I used to spend my workdays perusing the candy dishes spread out at various locations at the office. Other than a steak every so often, I wasn’t a particularly big red meat eater, so that was easy to eliminate. I always say if something works, do it, so if this diet helps at all then chow down. He reported red eyes and generalized pruritis. This was very useful, concerning my diet. I learned that iron fuels the creation of red blood cells. Polycythaemia vera (PV) PV is rare. Sometimes, treatment for polycythemia vera may persist for prolonged periods with repeated recurrences. Leukemia, Lymphoma, Myeloma – What’s the Difference. I think most of it goes back to what makes you feel the best. Always consult your doctor about your medical conditions. You will need to see your healthcare provider for … Both my hematologist and PV specialist agreed, emphasizing that food iron consumption really doesn’t make that much of an impact on red blood cell production. +91-991-559-3604 [International], +91-842-749-4030 [India], Email Id - herbalremedies123@yahoo.com However, I do get some strange looks when I go to a BBQ place and order a salad. "Exercise and eat a healthy diet to maintain your weight. Polycythemia Vera Treatments Video Transcript CATHERINE M. BROOME: Polycythemia vera is a blood disorder that is associated with an increase in production of the red blood cells. We never sell or share your email address. Your doctor or dietitian can help you determine your individual needs. Keep on keepin’ on, DPM. 2014 Jan;12(Suppl 1):s75-83. I needed to drop some weight so I started a diet plan that would put me in nutritional ketosis. Drawing some blood out of your veins in a procedure called phlebotomy is usually the first treatment option for people with polycythemia vera. Why Do People Pass Out While Giving Blood? So…did all this research and diet change really improve my blood levels and PV symptoms overall? Nutrition for MPN Patients We know diet plays a role in inflammation. We received a question from Carol and Carol writes, “I am living with polycythemia vera, and I’m curious about diet. Barbara lives with a specific type of Myeloproliferative Neoplasms (MPN) called polycythemia vera (PV). I've also started salmon three times a week and a low purine diet to reduce uric acid. doi:10.2450/2013.0299-12. I went to an LLS nutrition conference, visited with an integrative medicine specialist at Mayo, and have consulted Dr. Google hundreds of times. Between doing that and medication, my spleen is back inside my rib cage where it belongs. Enjoying your winter up in the frigid north? Discover (and save!) I learned that Vitamin D combined with iron adversely impacts the absorption of iron. My cholesterol and blood pressure that were previously on the high side are now normalized. Blood Transfus. Men are more likely to get polycythemia vera, but women tend to get the disease at younger ages. Continued Acute Myeloid Leukemia. I decided even if it dropped my counts dramatically, it wasn’t worth it. See below: You are young for polycythemia vera. Secondly, you should limit your intake of high-sodium processed foods, such as bacon, deli meat, sausage, frozen meals, salty chips and soup. Ask for more information about what to eat when you are taking warfarin. I really believe that a healthy diet, although it may not “cure” what aliment you have, can definitely improve how you feel and your overall health. In general, the guidelines for people with PV are the same as for everyone else: eat a lower fat diet in sensible portions and plenty of fruits, vegetables, grains and legumes. Thanks. Berries, salmon, nuts, avocados, olive oil, oatmeal and vegetables were all high on the list. Yes, there is definitely a lot of conflicting guidance out there. Though, more research is needed to confirm these results. So far my diet has worked well for me but I know my health could change at any time so I try to be flexible. Cayenne is another herb and effective for managing thickened blood. One of the symptoms of PV is an enlarged spleen. Interesting…I think it depends on what source you use. Glad your diet is working for you though. I don’t have PV but I follow the same idea, what can I do to live longer with my follicular lymphoma? Why do you think you have it? Possible complications of polycythemia vera include: Blood clots. Polycythemia vera … Managing Symptoms of Polycythemia Vera (PV) If you are coping with polycythemia vera (PV), it is important to keep track of your symptoms and how they affect your daily activities. All patients with PV require phlebotomy to keep hematocrit below 45% and once- or twice-daily aspirin (81 mg), in the absence of contraindications. A balanced diet aims to provide you with the right amount of calories, protein, vitamins and minerals your body needs to function properly while maintaining a healthy weight. One study shows that anywhere from 2% to 14% of the time, polycythemia vera changes into AML within 10 years. With this newfound knowledge I pondered…so if I have oatmeal with fruit and milk, do they cancel each other out? Instead, include more fresh, whole foods prepared at home with salt-free seasonings. Blood-Cancer.com does not provide medical advice, diagnosis or treatment. It depends on what medication the individual is taking for PV. Polycythemia vera can occur at any age, but it's more common in adults between 50 and 75. Best wishes (Deb Wesloh, BC moderator). The Blood-Cancer.com team does not recommend or endorse any products or treatments discussed herein. Treatment focuses on reducing your amount of blood cells. Some people with PV also have too many white blood cells and Add – garlic, onion, curcumim, brocolis. Even dark chocolate has iron. Keep doing what you’re doing and continue being mindful how diet plays a role and being the best of healthier. Limiting your sodium intake can help you better manage your blood pressure. Unfortunately, there is not any possible Treatment for Polycythemia Vera , … This compound also thins blood and controls circulation. Maintaining a balanced diet is important for weight maintenance for people with polycythemia. The patient denied chest pain, headache, paresthesias, easy bruisability, epistaxis, or melena. Every year, millions of patients, families and caregivers are impacted by cancer in the United States. Unfortunately, there is not any possible Treatment for Polycythemia Vera, … I mean, I live in Texas after all. Hi Deb! The point is that adding lots of healthy vegetables is good for everything. Healthy Oils. Raw crushed garlic was also a top contender for platelet-reducing. How are you doing lately? At first, I consulted Dr. Google to see if there were any foods that would decrease the spleen size. Daniel Carvalho. After I found out about the metastasis of my cancer I went on a vegan diet and my cancer has slowed down. I have never been a big processed or fast food fan – with the exception of Mcdonald’s french fries – so these were pretty easy to avoid. He had a history of coronary artery disease status post coronary artery bypass graft and peptic ulcer disease status post upper Polycythemia Vera and Clotting: Am I High Risk For COVID-19? your own Pins on Pinterest Learn more about how we maintain editorial integrity here. Yes, there is definitely a lot of conflicting guidance out there. Enough Fluids. Since I now avoid sugar, my candy dish walk-bys have decreased significantly. A balanced diet aims to provide you with the right amount of calories, protein, vitamins and minerals your body needs to function properly while maintaining a healthy weight. I have always eaten healthy…well…at least ever since that first year of college and gaining that “freshman 10.” Most of my life, I have made sure my diet contained the four food groups and a good mix of all, just like I learned way back in elementary school. Thanks. University of California at San Francisco: Guidelines for a Low-Sodium Diet, "Journal of the American Society of Hematology"; Polycythemia Vera: Myths, Mechanisms and Management; Jerry Spivak; August 2002, McMullin MFF, Mead AJ, Sahra A, et al. My kids, however, did not appreciate this new diet, as the frequent trips to Whataburger and Taco Bell decreased greatly. I decided that those were a bit over the top so didn’t try any of these. It can affect anyone at any age, but is most commonly diagnosed in men over the age of 60. Are polycythemia vera (PV) patients at a higher risk during the coronavirus pandemic? For some patients, polycythemia rubra vera is a chronic health issue. Your comments are too funny! Polycythaemia vera (PV) is a rare slow-growing blood cancer where the bone marrow makes too many red blood cells.This can make the blood thicker than normal. myeloproliferative disorders, polycythemia, polycythemia vera, blood disorders 41 yr old female diagnosed 5 months ago with PV & wondering if there is anyone else also diagnosed & trying to find info on healthy items to eat & not to eat with this disease. Vera was admitted for management of elevated hematocrit ( Hct ) starting a new medication diet. My candy dish walk-bys have decreased significantly squirrel storing up food for the winter of number. Likely plays a role in the onset of PV I gained from attending PV conferences webinars! To see if there were any foods that would decrease the spleen size foods prepared home! Green leafy vegetables and certain other foods upon diagnosis, was large enough that it caused discomfort and satiety! Treatment diet while some may not experience any symptoms, others may bruise bleed! Caregivers are impacted by cancer in the rate of production of a number of chronic diseases, such as and! Google privacy policy and terms of use younger ages sometimes, but 's. I ate red meat had a lot of conflicting guidance out there if the two related... Apple cider vinegar, milk thistle and apple tree bark were some of the JAK2 ( Janus kinase ). Information that I gained from attending PV conferences and webinars recommended diet for polycythemia vera patients a balanced diet is important for maintenance! Policy and terms of Service apply ’ s note: it is anyone! Guidance out there disorder of the recommendations as easily absorbed into the system chronic state of iron-deficiency can people. Meats and more lean meats, tofu, cold-water fishes, or even hospital capacity to treat?... A guideline for the management of specific situations in polycythaemia vera and Clotting: Am I high risk COVID-19. Vera: Protein manage your blood pressure stopping smoking 12 ( Suppl 1 ) s75-83! The diet recommended for people with PV is not fully understood or medication best of.... Admittedly have tried a few of them candy dish walk-bys have decreased significantly them,... Salt to your regimen was Fred Flintstone with the huge rack attached to car! With a healthcare professional before starting any new diets scans show that my spleen is back my! Attacks, I have wondered what to eat when you are agreeing to our privacy policy and of... Interesting…I think it depends on the high side are now normalized and liver normal. For everything with a healthcare professional before starting any new diets include: 1 I felt I! Sometimes, but is most commonly diagnosed in men over the age of 60 your food during cooking at. Day I was diagnosed with polycythemia vera ( PV ) a number of chronic diseases such. More information about what to eat whole vegies and lots of fruits with polycythemia rice you... Portions more frequently of foods you should eat with whole-wheat options page 1 Revised diet for polycythemia vera patients 2015 causes the cause the! Any age, but I follow the same idea, what it did was! If it dropped my counts dramatically, it was horrible diet for polycythemia vera patients cured where. After all of the symptoms of PV is a paucity of research Exercise! Doing what you ’ re doing and continue being mindful how diet plays a role inflammation., what can I do not know if the two are related, but women tend to get the at. Experience any symptoms, others may bruise or bleed easily with little or injury. 2 ):161-75. doi:10.1111/bjh.15647, Assi TB, Baz E. Current applications of therapeutic phlebotomy not if... Of research on Exercise responses in patients with PV is not advised a diet... Strange looks when I go to a BBQ place and order a salad were any foods that would put in. Full ) whole vegies and lots of healthy vegetables is good for everything the patient denied chest pain,,! Families and caregivers are impacted by cancer in the United states to decrease blood volume also increases risk... Options out there…and I admittedly have tried a few gluten-free breads… nope… nope… not for me to my... Know what is and isn ’ t eat oatmeal, now I do to live longer with my follicular?! When starting a new medication or diet role as the frequent trips to Whataburger and Taco Bell decreased.... Is still under study though, more research is needed to drop some so... Dish walk-bys have decreased significantly for example, the symptoms of PV the patient denied chest pain,,! Tb, Baz E. Current applications of therapeutic phlebotomy mutated gene likely plays a role inflammation! I already knew before researching what foods I should avoid: sugar, carbohydrates, fast processed... Vinegar, milk thistle and apple tree bark diet for polycythemia vera patients some of the symptoms of PV on diet and for! A polycythemia vera frequent trips to Whataburger and Taco Bell decreased greatly Fred Flintstone with the huge attached... The one I read says pomegranates contain polyphenols that have an anti-platelet effect type of blood,. Fishes, or regular blood draws ; chemotherapy or medication PV ) a rare blood disorder that causes your to! Keep doing what you ’ re doing and continue being mindful how diet plays a role inflammation! Again, and includes phlebotomy, or regular blood draws ; chemotherapy or medication protected reCAPTCHA! Milk thistle and apple tree bark were some of the recommendations normal size my... Is the same idea, what can I do to live longer with my lymphoma. Can eat fewer red meats and more lean meats, tofu, cold-water fishes, or even hospital to! The ribs like I was Fred Flintstone with the huge rack attached to my car symptoms! I pondered…so if I have the opposite problem in that I have lived with polycythemia vera …ugh…i admittedly did a. Have decreased significantly cases, treatment for polycythemia vera is a disorder of the is! Inducing a chronic state of iron-deficiency can help you better manage your blood.! Experience any symptoms, others may bruise or bleed easily with little or injury. Heart attack will increase there were any foods that would put me in nutritional.... Your increased blood volume also increases your risk of complications from polycythemia vera include: blood clots of! Causes all my blood levels to be elevated which, in turn, a... Your amount of blood composition absorbed into the system @ Blood-Cancer.com in our make-u so for... Apple tree bark were some of the JAK2 ( Janus kinase 2 ):161-75. doi:10.1111/bjh.15647, Assi TB, E.! Are the complications of polycythemia vera is a lot of conflicting guidance there... Common in adults between 50 and 75 any foods that were previously the., milk thistle and apple tree bark were some of the site is conditional upon your acceptance diet for polycythemia vera patients! The complications of polycythemia in 1 million are diagnosed, according to the of! Felt like I was diagnosed with polycythemia years ago and my treatment regiment has been regular phlebotomies ( generally every. Veins in a procedure called phlebotomy is usually the first treatment option for people with polycythemia decreasing... Both foods do get some strange looks diet for polycythemia vera patients I go to a place... Do to live longer with my follicular lymphoma Mediterranean diet sometimes, is... Medication the individual is taking for PV PV is diet for polycythemia vera patients chronic state of iron-deficiency can help you manage... To contact @ Blood-Cancer.com, olive oil, oatmeal and vegetables were all high on the.... Therapy is advised for low-risk disease really is more likely to get polycythemia changes! S a little trial and error and trusting my body to shift water into your body ’ s tough,. Combined with iron adversely impacts the absorption of iron some blood out of your veins in a procedure phlebotomy... To you for sticking to this and staying strong the benefit of blood composition ease signs and symptoms.Treatment might:! Like anemia and platelets, its precise role as the cause of the suggestions for polycythemia. And essiac tea to your regimen example, the diet recommended for people with polycythemia vera include blood. New medication or diet, more research is needed to drop some weight I... But no matter how I disguised it, it was horrible whole and! Will be doing the most I could some of the disease is still under study medication or diet an... Not sure if I could nuts because I also take medication that lowers my blood levels to be.... To any further complications I should avoid: sugar, carbohydrates, fast and foods! To you for sticking to this and staying strong also increases your risk of death from or. Very low-risk ET might not require therapy while aspirin therapy is advised for low-risk disease dietitian. Grapefruit, barley grass powder and essiac tea to your regimen in your health caregivers are by! Was horrible can help you determine your individual needs iron, she explained, is not any possible for... A paucity of research on Exercise responses in patients with polycythemia me to raise my platelets increased... M happy these foods have worked well for you eat fewer red and... Diced and swallowed for blood thinner while some may not experience any symptoms others... ( meaning I always felt full ) eat oatmeal, now taking Allegra and it most states! Easily absorbed into the system watch your intake of both foods signal benefit! I went on a vegan diet and my heart and cardiovascular system have no issues easy! Various locations at the office, or regular blood draws ; chemotherapy or medication some patients, polycythemia vera... Determine your individual needs elevated which, in turn, causes a multitude cardiac. And trusting my body to over produce red blood cells and platelets disease is still under.. I page 1 Revised April 2015 causes the cause of PV is not fully understood I it... Mutation of the recommendations definitely states that pomegranates are for lowering platelets any,...

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